2009 – Aged 44 – My leg was getting unmanageable and so I tried to find someone to help me sort my leg out. Our Doctor sent me to see our Practitioner Nurse because there was no Lymphedema practice in Hull. She then kept a record of the size of my leg, she bandaged my leg back up like what we were doing years ago at the lymphedema clinic at Princess Royal, Hull.
May 2009 – Aged 44 – My doctor sent me to see a Vascular Specialist at Hull Royal Infirmary.
August 2009 – Aged 45 – Intense treatment of bandages at home with partner & with the Practitioner Nurse continued daily, sometimes several times a day thanks to my partner.
November 2009 – Aged 45 – I went to see the Vascular Specialist at Hull Royal Infirmary and they signed me off as there was nothing more they could do for me as I was already having treatment, of some sorts, on my leg. (Bandages)
Throughout 2010 – Aged 45/46 – Intense treatment of bandages at home with partner & with the Practitioner Nurse continued daily, sometimes several times a day.
Aug. 2010 – Aged 46 – Once my leg had gone down considerably the Practitioner Nurse decided to measure me up for a surgical stocking. A lady had to come down all the way from Glasgow to measure me up & show our Practitioner Nurse how to measure up a Lymphedema leg for a surgical stocking as they were not trained for it.
May 2011 – I was a Lymphedema Model for a day, (Well my leg was) as I was invited to the Orchard Park Medical Centre to let all the Nurse’s watch as a lad came to measure me up & show the Nurse’s how to measure up & fit a Lymphedema leg properly for a surgical stocking as they were not trained for it.
Dec. 2011 – After months of asking and chasing things up, my Doctor arranged it for me to see a Lymphedema Nurse in Leeds. I can’t see the one in Hull as they were for Cancer Patients only which I think is a bit daft if we all have the same ailments even though I, along with a lot of others have PRIMARY lymphedema and they suffer with SECONDARY lymphedema.
Jan 2012 – I had a to go back to see the Lymphedema Nurse in Leeds to test my legs for treatment they were going to give me.
Feb. 2012 – I had a to go back to see the Lymphedema Nurse in Leeds for 2 weeks of intense Lymphatic Massage (Bandaging!) The worse thing about this is having to be sat on a bus for 2 hours to get to Leeds, have the treatment then sit for another 2 hours coming home every day for 2 weeks!!! If it isn’t nice for me, what about the elderly who have the same problem as me, making the same trip! Also during the first week of treatment this is when they noticed a mark on my left leg!
16th Apr. 2012 – I went back to see the Lymphedema Nurse in Leeds for a follow up appointment to see how my leg was doing after the intense treatment. (As you can see in the picture below, the mark is still there!)
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